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stephen edwards's avatar

Have you experimented with alternative methods? Ivermectin, Fenbenzadole, ways to reduce cysteine and methionine?

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Kevin Midgley's avatar

Quite the journey we are on. you are right we must appreciate everything about our lives and everyone’s journey is different.

after a prostatectomy i ended up with a 0.51.

75 days later it was 0.95 and a month and a half after that 1.48

after salvage radiation of 33 shots i got down to near perfect at 0.01.

3 months later a doubling to 0.02 and a month later 0.03.

that’s when i started on 72mg of ivermectin a day and a couple of curcumen capsules and a couple of cups of green matcha tea

I am hoping this holding pattern of two months at 0.03 continues.

Fingers crossed we make the right choices for ourselves.

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Keith R. Holden, M.D.'s avatar

Hi Kevin. I'm on a hardcore alternative regimen myself. It took a couple of weeks for my body to adjust to it, but I'm feeling good now. Next month's labs will be telling. I feel good about it.

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Kevin Midgley's avatar

i’m soon finishing up my first year on enzalutamide and have one more to go with 3 month injections. an oncologist consultation by phone today said carry on for another year. i really want to see my PSA numbers are lower the next time. it may be vindication to keep on my path of ivermectin curcumin and matcha green tea. just the enzalutamide wasn’t stopping the increasing psa numbers

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Keith R. Holden, M.D.'s avatar

I hear you brother. My current regimen includes 1000mg of BCM-95 Curcumin three times a day and 1 liter of unsweetened green tea daily.

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Keith R. Holden, M.D.'s avatar

Hi Stephen. Yes, I've lost track of how many different methods and combinations of medications and supplements I've tried. I took Fenbendazole and Ivermectin in the past. When I was on Ivermectin, it made me very very tired. Neither medication slowed the PSA doubling time. I attempted a low Methionine diet and found it too difficult to maintain. I did almost two years of Mistletoe injections and developed new metastases while on that. I experimented with some things I didn't discuss in the newsletters because I didn't find they made a difference. The period where my PSA doubling time slowed to 14 months was a period of extremely low stress regarding work and personal/family issues, so I know stress reduction makes the most impact. I've been steadily increasing my meditation and nature walks.

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stephen edwards's avatar

Have you used biclutamide? Or sulfasalazine? Sodium selenite?

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Keith R. Holden, M.D.'s avatar

I was offered bicalutamide and declined it because it can lead to castrate resistance. I don't know about the data with sulfasalazine or sodium selenite. I'll have to look those two up. Thanks for the suggestions.

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